The ME Association: Informing and supporting those affected by ME/CFS.

Since writing this blog one of the things Ive wanted to do most is raise awareness of one organisation, the ME association. Some of you won’t have the faintest idea what it is, or what ‘ME’ is.

Here is a quick definition:

Chronic fatigue syndrome (CFS) is the most common name given to a poorly understood, variably debilitating disorder or disorders of uncertain causation. It is also commonly known as myalgic encephalomyelitis or ME.

Symptoms of CFS include widespread muscle and joint pain, cognitiveexhaustion and other characteristic symptoms in a previously healthy and active person. Fatigue is a common symptom in many illnesses, but CFS is a multi-systemic disease and is relatively rare by comparison. difficulties, chronic, often severe mental and physical

From that you don’t really get much of an idea what it is, this is a quote taken from a sufferer who compares the desease to being ‘with an abusive partner’:

ME is a hugely complicated illness, and like abusive people, each form has its own tricks and tortures. It lets you appear capable and healthy, but inside you’re constantly physically and mentally exhausted. Remember, next time you see a sufferer, that in energy terms, he or she may have just climbed a mountain. But all they’ve done is sat and smiled at you. That’s what ME does. It fools the body into thinking that it’s just run a marathon, climbed a mountain, built a house, gone a week without sleep, but all it’s actually done is made lunch.”

I can say, being a sufferer myself, that is one of the most accurate descriptions I have ever heard.

The NHS do not address the issue, its a pandemic that has been well and truly swept under the carpet, sufferers are more often than not just given a packet of Prozac or ‘Cognitive behavioral therapy’, sent away after being effectively told they are mad.

They are not mentally ill, they are just very, very, pissed off.

To see what it really is like just look at what has happened to this person. This was in 2005, just before government funding into research was stopped.

And on today, the 16th of April 2009, the issue hit the headlines….well, it was mentioned but didn’t receive extensive coverage. A mention on the BBC website shows just how much the government don’t want anything to do with helping the thousands of people in the UK suffering this awful disease. There was not even a mention on the news.

The article is HERE

This page is here, not to encourage donations…that couldn’t be further from the truth. Its just here to raise awareness.

Thanks for reading.


One Response to “Charities”

  1. […] Charities […]

Comments are closed.

%d bloggers like this: